Standing in my toybox =)

Standing in my toybox =)

Sunday, March 25, 2012

vitamin k

ok..as most of you know vince only eats these foods (and it's on occasion-not an every day basis) cherrios/vanilla yoplait yogurt/applesauce/fruit snacks/gummy bears...he does not take ANY of his oral medications including his enzymes/antacid/vitamins/salt/or antibiotics (although we really push the antibiotics as much as any human really can!) because vince needs enzymes to absorb both fat and nutrients he does not gain weight or get the nutrition he should..including vitamins to his body and brain...his vitamin D came back low in december's blood work and he was started on 1ml of that daily...at 1st he'd do it..now it's a struggle! he also has not gained weight in the past 6 months..but has been able to maintain his weight...dr's are very confused how a CFer can not eat/take enzymes and not be losing drastic amounts of weight! lately a new problem has come up...i noticed unusual bruising.. (upper thighs/butt/back) and he had no complained of hurting himself in any way..so i thought i'd call the peds and do that along with a weight check..peds believes vince's vitamin k is low which is a fat soluble vitamin meaning vince needs enzymes to absorb this! yesterday he was standing near me while i got his pediasure and i noticed his arm looked funny..well it's bruised so bad it looked like he had been abused...red/purple/blue...he has a couple little ones up near his eye (he told me fell off the bike-but he shouldnt have bruised) and he has another largish one on his ankle...the way these are popping up i'm glad i called the peds when i did..the only thing vitamin k is found in that i can get into vince is blueberry juice..and it was only in this organic stuff that was like $5.99 on sale! and the bottle is rather small...peds is agreeing 100% on a gtube and even called akron and recomended that to them as well..(we're going to akron for a 2nd opinion on april 17th) i talked to our pharmacy (in person) and they feel vince needs the feeding tube NOW..that even april 17th is too long to wait!!! well this is the update for now..we are doing all we really can for vince and pushing this gtube as much as we can...