Standing in my toybox =)

Standing in my toybox =)

Friday, October 29, 2010

UPDATE

ok so here's the deal...on monday at speech therapy we noticed vince was having a hard time breathing,and since we knew he was growing bacteria and that he has asthma we chose to call the doctor and because his poo was not regulated yet...so we went up tuesday for xrays on his chest and abdomen..he did infact have extra mucous in his lungs but it is not pnemonia..he also has extra poo in his stomach,but as long as we keep up with miralax and that he goes each day he should be ok...i also FINALLY got the doctors listen to me and he will be started on tobi this coming wednesday..he will go to the clinic to be sure he doesnt have trouble breathing...then i chose to mention a rash he has on the backside of his hip where his diaper sits,and they say it could be the start of MRSA..but yet NEVER tested him..so i decided i was NOT going to let this go..i took him to the local urgent care at 1pm when they opened the following day..they said it looks to be an irritation of the diaper and told me i could cover it with a band aid or gauze at night and also gave me a prescription cream..the 1st night of doing this and the rash was almost gone..so now we are just trying to get caught up on some things at home..
***DONT FORGET TO CHECK OUT MY TEAM VINCE ALBUM AND SUPPORT THE CF FOUNDATION WITH A PURCHASE...i will also be selling pumpkin rolls WHOLE-$10 and HALF-$5....

Thursday, October 14, 2010

new diagnosis

well we went to our monthly visist this tuesday..vince's cold was mostly gone,although they did a culture to be sure there is no bacteria since he is still having trouble breathing..although from the info i told the and my concern they started him on an inhaled steroid called pulmicort..it seems to be helping after just 2 treatments..he is still a bit stuffy but much better..he was also still constipated so they upped the miralax to 2x a day and 1/4 - 1/2 cup of plum or prune juice each day..so much to remember..so the doctors do infact believe that vince has asthma..he gained a tiny bit of weight..he is up to 24 pounds and 1 ounce..and 30 1/2 inches tall...
his speech therapy has improved and his therapy time is down to a 1/2 hour once a week instead of an hour...he has tried many,many new foods in the past week,and i am very proud of him...he is now trying to run...

Thursday, October 7, 2010

just a cold?

so vince started getting a snotty nose and cough over the weekend..so by tueday when he coughed up yellow mucous i decided i better call the dr to be sure it wasn't an infection...so we drive the 60+ minute drive to learn its just a cold (at this point)they said to continue 4-6 hour albuterol treatments during the day and to allow him to sleep at night...ad to give motrin around 5 since he has been cranky and his body could just be sore...latr after we made it home and were doing another treatment vince puked a large amount..which in a way is good so he gets the crap out...yesterday (wednesday) he was doing much better although still stuffy and has trouble breathing when he runs around...today he is about the same as yesterday..but as of yesterday was eating foods he had not eaten in a long time..soo we go back tuesday for his normal scheduled monthly appointment and they will see how he is...he has no fever which is a big sign there is no bacteria :) so lets hope he gets better completly by tusday!!!!!