Standing in my toybox =)

Standing in my toybox =)

Tuesday, July 19, 2011

eye opener

so yesterday i learned of a little girl with Cystic Fibrosis (who i have talked to her mom here and there) but i learned she had yet again been admitted (she was just in like a few weeks ago) but this time i was told she was coughing up blood,had one of worst CF bacterias in her lumgs (MRSA) and that her O2 was dropping and she was on oxegyn at night...i was in complete shock!!! how could this little girl who is vince's age be so sick!!!

no family of sam or i's can honestly say they understand what would happen from SMOKING,or the wrong bacteria getting in his would each of you feel if the dr's did a bronchoscopy on vince (camera in the lungs) and found grey mucous...because you THOUGHT you were far enough away!!! but yet no one thinks about the fact that his mucous in his throat and lungs is THICK and STICKY! i think every day how many people that i know actually think about vince and the fact that any little cold could become fatal...

we have tried so hard to let vince be 100% normal lately...we try not to freak out when someone doesn't sanitize anymore...we let him be a boy and play in dirt and rain water...and he just loves it! however i am terrified to see his next throat culture! it has been 4 months since his last culture..which showed staph and psuedamonous..well i believe the PA is gone because he always has a cough with that! and the staph is in every culture! before his 1st blockage i was able to get him to start eating a few new flavors of baby food..however now he is back to sweet potaotes :( i had to buy 2 cases today and im hoping it lasts through the weekend..

i honestly have no clue what i would do if i was in this other mama's spot..its terrifying to see what just 1 bug can do to our babies :/ they dont deserve this...and they surely dont deserve RUDE people who think its ok to smoke right behind him! its not his fault he has CF and if you want to kill YOUR lungs than you can go do it where vince is no where to be found! he shouldnt have to move,and i shouldnt have to move if i'm the one holding him! what if it were your kid?!?!?!

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