Standing in my toybox =)

Standing in my toybox =)

Saturday, July 24, 2010


ok,so this is my 1st post.I am Kaylah,Vince's mommy..his daddy is Sam,and he works +40 hours a week so i can stay home with Vince. Vince is going to be 11 months old tomorrow. He has Cystic Fibrosis(CF) and was diagnosed at 3 weeks old..when i was pregnant i chose to have the carrier testing done,even though no family on either side has ever had CF to our knowledge,when i tested positive,sam was tested and was also at about 7 months along we knew there was a chance our son would have this awful disease. On Septmeber 17,2009 we went to Toledo Childrens Hospital and had a sweat test and chest xray done,which all confirmed he did in fact have the disease,we were told at that point he had bronchitis,but everything would be ok..then 5 days later we were called and told he had pnemonia and needed to be admitted for a minimum of 10 days but to plan for a 2 week stay..and how exactly does that = ok? not in my book..when he came home he did great,had finally gained 2 pounds since birth and looked and acted happier than ever..hes done pretty well with everything..he was admitted once more on March 26,2010 for another 10 day stay for pnemonia..he is still doing well,however he has began puking atleast 1 whole feeding a day for 4 days..he is also having trouble pooping,itd be diareah,and then be a golf ball,so once again we headed to Toledo,where we learned he has the start of a stomach blockage and the hard stuff is part of that blockage,and the diareah is the poo being pushed past the he was put on miralax..this is day number 2 and we still have not had a good poop..gonna wait until monday or maybe tuesday and go back to Toledo for the same issue..well thats all for now..

No comments:

Post a Comment